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Rank: Newbie
Groups: Registered
Joined: 7/31/2010
Posts: 5
Location: Warwickshire
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Hello to everyone. I have been diagnosed 2 years with RA and on methotrexate and steroids. Due to start Humira on 10th August and hoping for great things. Just wondered how people reacted to their first Humira injection please and what to expect?  Look forward to getting to know you all. Appreciate your help. Best wishes Heather
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Heather,
Welcome to the forum!
I'm 60 and have had RA for 9 years.
I am also on humira, and when I had the first injection I had no bad reactions to it, in fact I haven't had any side effects at all apart from a rash for a couple of days round the injection site.
It took about 8 weeks before I began to notice things were improving, but some have had improvements earlier, some later, we all react differently.
Good luck with it, I hope it turns out to be very effective for you.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Heather, Welcome to the forum, though sorry of course that you have RA. I`m Kathleen, live in Durham with husband Nick. I was diagnosed almost 5 years ago now, and started humira about 3 years ago. It has made a considerable difference to my quality of life, so I hope it does the same for you. I`ve been lucky not to have had any side effects from it, and although the injection stings a bit at first, it`s really not too bad. I find injecting into my tummy is best ( more fat there!). With me, I began to feel a difference after the first 3 injections, ie about 6 weeks. Good luck with it, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Heather A warm welcome to the forum, I m pleased you have joined us  I am unable to give advice on Humira, I am hoping to go on infliximab soon as leflunomide hasn t done the trick. Wishing you all the best with your new treatment. Take care, Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hi Heather- I've been on Humira for about a year now and although I don't really feel that much difference, my blood results are better and the consultant assures me that should I stop taking the Humira, then I would soon wish i was back on it. As already said, it does work at different speeds for different people but don't expect an immediate result-(although of course you might get one and I really hope you do!). Oh-and welcome to the forum!  YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Heather Welcome to the forum but sorry you have the one credential that gives you membership of this very elite group, RA!  I'm Lyn, married to Mike, four kids aged between 15-22 including twins, and we live on the Fylde Coast in Lancashire. I was diagnosed with sero negative RA 22 years ago and run the gamut of medications and some surgical procedures. Currently recovering from knee op so without much in the way of RA meds! I'm currently (well I would be if it wasn't for the op!) on Enbrel, Prednisolone, Naproxen and oodles of pain killers - becoming quite the drug monkey! I haven't had experience of Humira but my experiences of anti tnfs have been positive ones. I'm on my second, Enbrel, after Infliximab lost its efficacy. Both drugs have been great though and I'm sure Humira will be similar. Good luck with it, hope it all goes well. Lyn x
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Rank: Newbie
Groups: Registered
Joined: 7/31/2010
Posts: 5
Location: Warwickshire
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Thank you all for your very helpful and supportive responses. Really appreciate it. Love Heather xx 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Heather,
Welcome to the forum. I'm due to start Humira on 23 August - we'll have to compare notes!
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Hi Heather, and another welcome to the forum its a great place, especially if like me there's nobobdy else you know with RA, I've also had RA just under 3 years.
Humira was my first anti TNF, Health at home came and taught me how to inject using the epi type pen which is what I presume you'll get, it was so easy, wash hands, wipe leg with something that came with the pen, pinch a lump of fat up on your leg, (if you have any - if not I have some spare) put the pen on your leg and press hold for 10 seconds and hey presto its done, the thought of it was much worse that doing it.
I didn't have any bad reactions to it at all , the nurse stayed for about an hour after it was done to make sure I was okay and then I got in the car and drove 200 miles to Sussex without any ill effects, (probably not the most sensible thing to do but there were reasons for having to do that).
I believe some people inject into the stomach, I did that when on enbrel, but that wasn't an epi pen.
Hoping that it brings you some relief, and that all goes well with it.
Best wishes
Sheila
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Heather, I'm Lorna, I have had RA for almost 3 years. I am married to Ken for 28 years and have 3 lovely daughters. I was on the triple therapy from being diagnosed although no longer on Sulphasalazine, I no longer need this one. I was very ill in the beginning but keep really well now as long as I do not overdo things. Good luck with your new medication I wish you every success with it. Take care Lorna x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Heather and Welcome to the RA 'group'. Sorry I am late in my welcome I have been in Ireland for a few days. I am Rose from Somerset but I am afraid do not have any experience on Humira. Keep posting Rose
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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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Hi Heather, my experience in the last year with humira has been: Healthcare at Home are good at their delivery job. Humira is very, very easy to use. I felt effects of it the next day, joints began crunching as they deflamed. My joints then got pretty sore and unstable for at least a month as everything calmed down and kind of shifted back into normal. I also started feeling less flu like and fatigued within a week, though I slept a lot for a few months, just because I could really. A kind of convalesence. No more waking up because something hurt.
I started swimming again after three months, but after 6 months things started going fairly wrong. My oldest son started primary school and he bought home cold after cold after tummy bug and I was often too ill for weeks at a time take the Humira, so the RA flared. When spring came and oh it felt late this year! everything calmed down, we got used to the new sub-culture of bugs running around reception and now here I am again fit as a fiddle RA wise.
Wishing you as much progress as I have been fortunate to make. best, Franky.
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 89 Location: Braintree, Essex
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HI Heather, welcome to the forum
Im Corinne had R.A for 18mths now ,Im waiting to start Humira too(not got a date yet) as I failed on mtx,sulp. I hope everything goes well for you keep posting as you will have found there is alot of support to help through the rough times also the good :)
love corinne xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello!
I am Jenni, 34, married, 3 children and I am really sorry to hear that you have the dreaded RA. I took Humira, but as with the other drugs like it I have not been able to tollerate them (severe vomitting and the runs then confusion). I have to tell you though that everyone else bar 2 I know on it have done very very well and it has given them much better control over the RA.
I am sure you will be fine
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Heather,
A warm welcome to the forum. I've had RA nearly 2 years now and did not do well on Humira. After 4 injections I developed a very rare side effect called Palmoplanter pustulous a rare form of psoriasis on my hands and feet. In saying that, I do know of many people who have done well on Humira and that it has greatly improved their quality of life, so please don't be put off by my experience.
love,
Barbara
XXXXXX
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Rank: Newbie
Groups: Registered
Joined: 7/31/2010
Posts: 5
Location: Warwickshire
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I couldn't start Humira as I have tonsilitis and on my 2nd course of antibiotics. Hoping to commence it on Tuesday 17th August. I feel as though I have lost my nerve to take it now.
Heather
xx
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Rank: Advanced Member Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Heather, Poor you with tonsillitis, that can be so sore. Keep your chin up and look forward, Take the Humira it may be the start to feeling great, be positive if it causes problems then you stop. It is hard when you have to take these drugs but it is better that all the pain, I have been there too, believe it's going to work and take things gently until it's in your system. I'm sure you will be ok. Thinking about you and take care. Love Lorna x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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hi Chockers here really Christine 57 married to a toy boy have a 23 r son who just done his Masters had r/a for 3 years well dx for 3 years on MTX i also have overlaps but very mild love Christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Sorry to hear that you have tonsilitis - Get well soon
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 216
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Good luck for Tuesday, hope it all goes well for you, love from Lylie Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
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